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= = = = = = = = = = = = = = = = = =I writing to urge you tonot let the government set standard medication dosages for individual patients, which will happen if this agency adopts policies based on the scientifically flawed CDC Opioid Prescribing Guidelines.I inherited a permanently painful and disabling disorder, Ehlers Danlos Syndrome, and have been taking high doses of opioids for the last 20 years. I was able to maintain employment for 10 of those years before the pain became too great.Countless other treatments, therapies, and medications, were ineffective or far too expensive. For me and many others, only opioids provide effective pain relief, so enforcing arbitrary opioid limits is cruel and unusual punishment for pain patients.Thanks to opioids I still functional enough to write you this letter, even though it took me several days to complete.

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